Priorities For End-Of-Life Care Revealed By Europe-Wide Survey

Main Category: Palliative Care / Hospice Care
Also Included In: Cancer / Oncology;  Caregivers / Homecare
Article Date: 24 Mar 2011 - 3:00 PDT
A survey of over 9,000 people in seven different countries across Europe has shown that the majority would want to improve the quality of life in the time they had left, rather than extend it. The survey reveals attitudes across Europe for dealing with serious illnesses such ascancer, and issues raised when caring for a close friend of relative in the last few months of life. The research was carried out as part of an EU-funded project led by researchers from King's College London.

The telephone survey of 9,339 people was carried out to explore attitudes to end of life care in seven European countries: Germany, England, the Netherlands, Belgium (Flanders), Portugal, Spain and Italy. The survey showed that 71% of people said they would want to improve quality of life for the time they had left; 4% would like to extend life; and 25% said both quality and extending life was equally important. Across all countries in the survey, 'being in pain' was the symptom or problem that was of most concern, followed by 'being a burden to others'

The results of the survey will be discussed by policy makers, research funders and experts in palliative care on Thursday in Brussels at a symposium held by PRISMA - a consortium of experts from nine European and African countries, led by King's College London. The PRISMA group says greater attention must be paid to quality of life alongside potentially life-prolonging treatments, as the survey shows quality of life is important to people, often more so than extending it.

A group of leading researchers and clinicians, led by Professor Irene Higginson OBE at King's College London, will call for delivery of end-of-life care across Europe to be reviewed in the light of the results, and investment in research increased, in order to meet people's needs more effectively at the end of their lives.

Professor Irene Higginson OBE, scientific lead of PRISMA and Professor of Palliative Care and Policy at King's College London, said: 'There needs to be a fundamental shift in the approach to delivering end-of-life care across Europe. Although individuals' priorities and needs will differ, it is absolutely clear that people value highly the quality of the time they have left.

'What we need to see is a step-change in the way policy-makers and clinicians across Europe look at end-of-life care, and ensure that people's priorities and needs inform planning and delivery of these services. Together with an increased investment in scientific research into end-of-life care, this will really make a difference to the quality of people's lives as they face their last weeks and days.'

The PRISMA group is calling for a change in the way all health care professionals working with patients with advanced diseases measure things which are important to patients and their families. Currently, the focus is on physical tests such as x-rays, scans and monitoring bloods. But PRISMA warns that, although important, these routine tests may miss the effects of the illness on the person and their family. A move towards assessment of symptoms, psychological, social and spiritual needs is urgently required in order to ensure an adequate response to patient and family priorities.

PRISMA compared the survey results with the views of nearly 800 clinicians working in end-of-life care and recommended a five-pronged approach to tackle: symptom control; emotional well-being; family support; choice for where to be cared for; and information needs.

Professor Stein Kaasa, a member of PRISMA, Professor of Palliative Medicine and an oncologist at the Norwegian University of Science and Technology said: 'It is now the responsibility of all clinicians working with patients with life-threatening diseases such as advanced cancer, to measure and lead others to measure the outcomes of their work against what matters to patients, so they know they are on the right track to providing quality care.'

Source:
Katherine Barnes
King's College London

http://www.medicalnewstoday.com/articles/220052.php

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2010 Tax Tips for Family Caregivers

If you are supporting an elderly parent, you may qualify for some tax benefits from the government that rewards you for your caregiving efforts. These tax benefits may include claiming your parent as a dependant on your tax return or deducting the contributions you made towards their medical expenses and medical care. In order to qualify for these tax breaks, you must first be aware of the tax benefits available and then determine whether or not you qualify. "It is important for all family caregivers to verify their eligibility and take advantage of these tax credits," said Allen Hager, chairman and CEO of Right at Home, Inc, an international in-home care franchise.
Tip #1: Determine if You are Able to Claim Your Elderly Parent as a Dependent
If you support your elderly parent, you will want to claim them as a dependant on your tax return to receive the maximum amount of tax savings. You can then take an exemption for the 2010 tax year which will equate to a reduction of your taxable income by $3,650. In order to determine if you qualify to claim your elderly parent as a dependent, you will need to pass the following four tests.

1. Not a qualifying child test
2. Member of household or relationship test
3. Gross income test
4. Support test

Not a Qualifying Child Test
Obviously, a qualifying child is another type of a dependent; however, the IRS wants to ensure a qualifying child dependent status (which has its own set of requirements, such as under age 24 and a full-time student) is not claimed using these four tests. This test is a non-issue for caregivers.
Member of Household or Relationship Test
If you are a son or daughter who is caring for a parent, you qualify since you meet the relationship test. You and your parent do not need to live with one another in order to qualify. In the case where a parent lives on their own or in assisted living, your parent may still qualify as a dependant as long as they pass the other tests.
Gross Income Test
In order to meet the requirements of this test and qualify as a dependant, your parent's gross income for the year must be less than $3,650. This amount does not include income from non-social securityor disability payments. However, income received from other sources, such as withdrawals from retirement plans, pension benefits, rental income, or interest and dividends from investments would go towards a parent's income total, which could disqualify them as a dependant if they exceed the income limit.
Support Test
The final test to complete is the support test. This test can be the most complicated to determine. In order to meet the requirements of this test, you must pay for over half of your parent's expenses. There are many factors involved in coming to this conclusion including food, housing, clothing, medical care and transportation expenses.

Tip #2: File a "Multiple Support Declaration" if Multiple Siblings are Providing Support
Another possible deduction comes into play when there are multiple siblings giving support for a parent. In this case, as long as a sibling provides at least 10 percent of the support and the combined support of all siblings makes up half of their parent's annual expenses, the parent could be claimed as a dependent. However, only one sibling can take the exemption for the parent. An agreement needs to be reached each year as to which sibling will take the exemption on their return. The sibling taking the exemption will need to file Form 2120, Multiple Support Declaration, and have all of the other siblings sign the form claiming that they will not take the exemption on their own return.
Tip #3: Determine if You are Eligible for a Dependent-Care Credit
As a family caregiver, you may be eligible for the Child and Dependent Care Credit if you paid someone else to care for your elderly parent so you were allowed the opportunity to work or look for work. If eligible, you would be allowed a credit of up to 35 percent of the expenses paid for dependent care with the maximum amount of expenses being $3,000. This means the tax credit can be worth up to $1,050. To be eligible, the care recipient must be unable to physically or mentally care for him or herself. Care recipients must also be claimed as a dependent (or could claim as a dependent expect that the person had a gross income of $3,650) on the caregiver's tax return, according to the qualifications listed on IRS Form 2441.
Tip #4: Deduct Your Parent's Medical Costs
If you were not able to claim your elderly parent as a dependant because his or her gross income was more than $3,650, there still may be a chance to receive tax savings this tax year. Medical expenses may be deducted on your tax return, along with your own expenses, for dependants and for individuals that would have been a dependant, except for the income guidelines. The IRS allows caregivers to deduct costs incurred from a parent's health care, such as hospitalization,prescription drugs, dental care and even long-term care services. The deduction is limited to medical expenses that are in excess of 7.5 percent of the caregiver's adjusted gross income (AGI). So in the case where a caregiver makes $50,000 in 2010, they would not be able to receive any deductions until they had paid medical bills accumulating to $3,750.

http://www.agingcare.com/Featured-Stories/145339/claiming-elderly-parents-as-dependents-2010-taxes.htm

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New Devices Help Seniors Stay Longer in Their Own Homes

Sensors, GPS and more are being used to track aging parents' movements

By Dennis Thompson
HealthDay Reporter
TUESDAY, Jan. 18 (HealthDay News) -- Seniors who want to remain in their homes despite illness and infirmity can get a high-tech assist these days.
So can their children who might worry about an elderly parent living alone, often far from family members.
The 1980s-era medical alert pendants made famous by their television advertising ("I've fallen, and I can't get up!") are now among a wide array of devices that can help keep an eye on aging parents and get them help when they need it.
Available technologies include:

• Sensors in the home to track an older person's movement, from the front door to the medicine cabinet to the refrigerator to the stove. The sensors are linked with computers that can issue alerts when people deviate from their routine.
• Global positioning system devices, using the GPS technology that's become so common in cars, that can help locate someone with dementia who's wandered from home.
• Computerized pillboxes that track whether medication is being taken on time.

"The notion behind these technologies is that people stay in their homes with some peace of mind on both their and their families' part," said Elinor Ginzler, AARP's senior vice president for livable communities. "In many cases, sensors are actually placed in various places throughout the older person's home. They are continuously tracking data. More or less all of them are looking for changes in that typical pattern and can note that change and alert responsible parties."
Ginzler gave the example of a "sensor checking to see if the front door is opened to pick up the newspaper every day by a certain time, because that's what Dad does." If he usually gets the paper by 7:30 a.m. and it's now 8:30 a.m., an alert might be sent to his son or daughter letting them know about the deviation in his schedule. They then have the option of calling to check in on him.
It might seem that older parents would reject the loss of privacy that can come with so much electronic eavesdropping, but that's an incorrect assumption, Ginzler said.
Nearly nine in 10 seniors in an AARP survey said they would be willing to give up some privacy if it allowed them to remain in their own homes longer. When asked about specific home safety technologies, seniors often said they would be willing to use them even if they weren't previously aware of the devices.
"Resoundingly, people said, 'Yeah, I'll learn new things,'" Ginzler said. "There's a resounding motivation for learning new things when your independence is on the line."
Though such devices aren't in wide use yet, a significant number of people seem to be taking advantage of them.
Harry Wang, director of health and mobile product research for Parks Associates, a Dallas-based market research firm that tracks digital technology trends, said that with "the senior safety tracking and monitoring that helps seniors remain in the home longer, we've seen a little bit better traction over the last several years."
About one in 10 caregivers of senior citizens use tracking sensors that can remotely detect a potential safety hazard in the home, according to an AARP survey of caregivers. About 16 percent of caregivers said they had used some type of emergency response system.
Parks Associates has projected that by 2012 more than 3.4 million senior citizens in the United States will be using networked sensor applications to monitor their movements and improve their health.
"There are more and more products out there, more and more technologies available," Wang said. "It's an emerging field. I don't think we're done with all those brilliant ideas yet."
However, Wang and Ginzler cited three things that must happen for such technologies to succeed:

• The design must be simple, elegant and enticing so that seniors can easily learn how to use the device -- and perhaps even enjoy it. "You have to make sure the solutions are well-designed, in the sense that it's exciting," Wang said. "It's not reminding seniors that they are old and fragile in the home, but reminding them that they are still young and able to enjoy life and remain in the home."
• The devices must come down in price. "The No. 1 barrier is the cost of the system," Wang said. "They must be affordable to seniors."
• Companies and families must market the devices properly. "A lot of this has to do with the way the technology is presented, and the family conversation about this," Ginzler said. "The message needs to be, 'We want to make sure you can stay in your house and be independent the way you want to be, and we can respond if you get in trouble.' When that family conversation goes well, it results in peace of mind both for that person and their family members."

http://consumer.healthday.com/Article.asp?AID=643459

"Learn About Senior In Home Health Care in Traverse City and Northern Michigan Senior Helpers Provides Many services in the Traverse City and Northern Michigan area. We provide a full array of Home Care services for seniors and the elderly living in this beautiful area. Our Home Care Services are provided by bonded and insured employees and all employees pass a National Background check. If you need Home Care services in Alpena, Bellaire, Boyne City, Cadillac, Charlevoix, Cheboygan, Empire, Frankfort, Gaylord, Grayling, Harbor Springs, Houghton Lake, Indian River, Northern Michigan, Petoskey, Roscommon, Suttons Bay, Tawas City, Traverse City, West Branch and the surrounding areas we are an excellent choice with impeccable references. Home Health Care for your elderly loved ones is never an easy choice but we can promise we will do our best to make it as painless as possible. From our family to yours we sincerely thank you for considering Senior Helpers of Traverse City and Northern Michigan Home Health Care Company. "